Celine Dion revealed on Thursday that she will cancel eight of her shows in Europe because she has been diagnosed with a rare disease that affects one in a million people.
The 54-year-old French Canadian singer told her 5.2 million followers on the platform that she has been diagnosed with “a very rare neurological disorder called the stiff person syndrome,” which has caused her muscles to spasm uncontrollably and also created difficulty walking and singing.
“While we’re still learning about this rare condition, we now know this is what’s been causing all of the spasms I’ve been having,” Dion said.
“Unfortunately, these spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing the way I’m used to,” the Grammy-winning singer continued, later adding that due to these challenges, it will be impossible to restart her tour in Europe in February.
Despite the devastating diagnosis, Dion remains positive, telling her followers that she’s grateful for her “precious children” and a “great team of doctors” helping and supporting her.
“I’m working hard with my sports medicine therapist every day to build back my strength and my ability to perform again but I have to admit it’s been a struggle,” Dion said.
“All I know is singing is what I’ve done all my life and it is what I love to do the most,” she continued. “I always give 100 percent when I do my show but my condition is not allowing me to give you that right now.”
“For me to reach you again, I have no choice but to concentrate on my health at this moment, and I have hope that I’m on the road to recovery. This is my focus, and I’m doing everything I can to recuperate.”
What is Stiff Person Syndrome?
The exact cause of stiff person syndrome (SPS) is still unknown and the extremely rare condition is not well understood in the medical field.The report notes that if left untreated, SPS symptoms can potentially progress to cause significant issues that affect the person’s ability to walk and perform routine, daily tasks.
“Spasms may occur randomly or be triggered by a variety of different events including a sudden noise or light physical contact,” the study stated.
As of today, there is no direct cure for the condition but there are drugs considered GABA-ergic agonist therapies such as benzodiazepines that can slow down the progression. There are also a number of non-medicative interventions, including stretching, heat therapy, aqua therapy, massage therapy, and acupuncture, among others, that can help to reduce symptoms.