I’ll never forget what the gastrointestinal doctor who found my rectal tumor told me moments after he said I had cancer. With a bit of hope and encouragement in his voice, he said: “You are young and healthy. You’ll get through it, good luck.” I didn’t understand fully why he said that at the time, but now having finished my cancer treatments, I get what he meant.
I knew that going through radiation, surgery, and chemotherapy was going to be brutal on my ultra-sensitive body, but I wasn’t prepared for the complications and side effects. I went on short-term disability the minute I was diagnosed. It was one of the best decisions I made, since it eliminated the stress of work for six-month intervals, and let me focus on getting through the battle I was about to face.
(Note: You can go on short-term disability more than once, which will be covered in another article.)
Phase 1: Radiation and Chemo
I went through 5 1/2 weeks of radiation plus oral chemo pills as the first course of treatment. Out of all the phases of treatment, this one was the easiest. I would get my dose of radiation around 10 a.m. Monday through Friday, and by 1–2 p.m. I’d feel really tired. Taking a nap helped. I was also told to walk at least 30 minutes a day to keep my stamina and energy going, though some days were tough due to nausea and fatigue.Phase 2: Tumor Removal and Ileostomy Surgery
After a two-month rest from phase 1, I finally got my tumor removed. My surgeon said it was a long and difficult surgery because my organs were hard as a rock and stuck together due to inflammation from the radiation. I had a very tough recovery. The pain from the large incision, the new ileostomy, my lack of appetite, and an infection that emerged five days after surgery hit my body very hard and led me to lose 20 pounds in a few weeks.However, through it all, I pushed myself to get out of bed and walk. All the doctors and nurses said that this was the best thing I could do for myself. I started out walking at least 10 laps around my hospital floor. When I went home, I started with one lap around the block, then two laps, until finally I could go to the park and walk for 30 minutes.
Phase 3: Chemo
This phase didn’t last long, as I experienced severe neurological side effects, random paralysis of left hand and lips from the infusions of Oxaliplatin and the oral chemo pills (Xeloda). I only did two out of six cycles of the infusions and pills.The trouble started when my throat swelled up so bad after the first infusion that I sat outside the emergency room in my brother’s car for an hour until my Benadryl kicked in. I had to take half a Benadryl pill with each chemo dose I took for the 14 days after my infusion. I also vomited quite a bit the week following the infusion. I relied on herbal peppermint tea and charcoal pills to help with this. They gave me Zofran, an anti-nausea med, but this didn’t always work and I wanted to have natural solutions as well.
Ileostomy Reversal Surgery
This phase was also very difficult for me. I thought I was good to go when I was released three days after my surgery, but severe abdominal spasms, diarrhea, and my inability to eat or drink anything a few days later led me back into the hospital for another 11 days.Phase 4: Post-Treatment
At this point, I’m dealing with inflammation, fatigue, increased food sensitivities, and joint pain throughout my body. It started a few weeks after my 11-day hospital stay. I’d wake up numerous times to numb and tingling hands and feet and have to shake them out. I didn’t know what was happening.I took a heavy metals test with my functional medicine doctor, knowing that my body was probably dealing with all of the metals contained in the chemo and in the contrast dyes that I took in the hospital. I was right. My platinum levels and three other metals were through the roof.
I’m now in the process of purging these via infrared sauna visits at a spa (I just bought one for my home), and via supplements that I’m told in a few months will remove the metals. So far, after one month I’m seeing positive signs that it’s working. I continue to walk about 45 minutes 3 to 5 times a week and still eat very clean and healthy with an occasional splurge on gluten-free muffins or cookies.
Join me next time when I share how faith and spirituality helped me through some desperate times.
Until then, breathe deep, be kind, and take it one day at a time.