One of the most devastating elements of the pandemic has been the inability to personally care for loved ones who have fallen ill.
How does one come to terms with the overwhelming grief and guilt over the thought of a loved one dying alone?
Unexpected Visitors
At the start of his career, Kerr was tasked—like any and all physicians—with attending to the physical care of his patients. But he soon noticed a phenomenon that seasoned nurses were already accustomed to. As patients approached death, many had dreams and visions of deceased loved ones who came back to comfort them in their final days.But after seeing the peace and comfort these end-of-life experiences seemed to bring his patients, Kerr decided to pause and listen. One day, in 2005, a dying patient named Mary had one such vision: She began moving her arms as if rocking a baby, cooing at her child who had died in infancy decades prior.
To Kerr, this didn’t seem like cognitive decline. What if, he wondered, patients’ own perceptions at life’s end mattered to their well-being in ways that shouldn’t concern just nurses, chaplains, and social workers?
The Project Begins
At the sight of dying patients reaching and calling out to their loved ones—many of whom they hadn’t seen, touched, or heard for decades—he began collecting and recording testimonies given directly by those who were dying. Over the course of 10 years, he and his research team recorded the end-of-life experiences of 1,400 patients and families.What he discovered astounded him. More than 80 percent of his patients—no matter what walk of life, background, or age group they came from—had end-of-life experiences that seemed to entail more than just strange dreams. These were vivid, meaningful, and transformative. And they always increased in frequency near death.
Becoming a Dream Weaver
I first heard of Kerr’s research in a barn.I couldn’t help but be moved by the work of this doctor and scientist. When he disclosed that he wasn’t getting far with the writing, I offered to help. He hesitated at first. I was an English professor who was an expert in taking apart the stories others wrote, not in writing them myself. His agent was concerned that I wouldn’t be able to write in ways that were accessible to the public—something academics aren’t exactly known for. I persisted, and the rest is history.
It was this collaboration that turned me into a writer.
One such story of visions of comfort is that of Robert, who was losing Barbara, his wife of 60 years. He was assailed by conflicting feelings of guilt, despair, and faith. One day, he inexplicably saw her reaching for the baby son they had lost decades ago, in a brief span of lucid dreaming. Robert was struck by his wife’s calm demeanor and blissful smile. It was a moment of pure wholeness, one that transformed their experience of the dying process. Barbara was living her passing as a time of love regained, and seeing her comforted brought Robert some peace in the midst of his irredeemable loss.
When children are dying, it’s often their beloved, deceased pets that make appearances. Thirteen-year-old Jessica, dying of a malignant form of bone-based cancer, started having visions of her former dog, Shadow. His presence reassured her. “I will be fine,” she told Kerr on one of his last visits.
Isolated But Not Alone
The health care system is difficult to change. Nevertheless, Kerr still hopes to help patients and their loved ones reclaim the dying process from a clinical approach to one that is appreciated as a rich and unique human experience.Pre-death dreams and visions help fill the void that may otherwise be created by the doubt and fear that death evokes. They help the dying reunite with those they have loved and lost, those who secured them, affirmed them, and brought them peace. These dreams and visions heal old wounds, restore dignity, and reclaim love. Knowing about this paradoxical reality helps the bereaved cope with grief as well.
As hospitals and nursing homes continue to remain closed to visitors because of the coronavirus pandemic, it may help to know that the dying rarely speak of being alone. They speak of being loved and put back together.
There is no substitute for being able to hold our loved ones in their last moments, but there may be solace in knowing that they were being held.
is a professor of English at the University at Buffalo. This article was first published on